x #twinklytuesday, Thank you so so much Claire, what you have said is more than enough and it means such a lot x, Honestly I dont really know what to say, but I always read your updates and I didnt want to read & run again. Your team will issue these as they arise. Not sure how the next three weeks will go, I'm pretty sure that damn bus is gonna come back and do a double take on me too! My doctors warned me: Each infusion will get harder. XO, Im happy to hear your day 1 wasnt too bad (and Im glad your mom is there to keep Super Kim in check). Everything tastes like cardboard yet smells disgustingly strong. Thank you for sharing! Most do not know this! Good luck xx, Hi Carole, It varies so much, some breeze through with few effects others like my hubby, suffer a lot. Track the details of your memory problems. It all adds up. Fortunately, I'm also given Ativan to help me sleep during these periods. But I like you survived the 4 AC and started taxol which is easier (it couldnt be any worse). Email me if you ever want a chat I hope your treatment is going really well :) x. Hi Mim, from friends I have heard how lousy chemo can make you feel and to think that anyone has to go through that in order to get well again makes me shudder, but I have no doubt that its better than the alternative. Just take the anti sickness medication , sleep if you need and if you can't eat ask for fortifying drinks from the chemo unit. On Day 2, my husband administers the Neulasta injection in my tummy. Patients that are getting weekly or even bi-monthly treatments are given pre-chemo meds more often than others with different time treatments. keep strong chicken 2 down 3 or 4 to go. She was still super aware about over-doing it and kept my Im Super Kim! I cant even explain the emotion of seeing someone else had experienced exactly what I have. Your nurse likewise helps monitor your health during treatment. I take two different pills and special dissolvable wafers a few times a day to fight the nausea. But I HATE the freaking port. Tip: Most people associate cancer patients with masks and bald heads. I stopped after the first chemo. It starts on about Day 3, like that foggy-headed hungover feeling and gets worse each day. On Day 16 Im much better again. #TwinklyTuesday, Thank you so so much Tracey I desperately didnt want it to be a horror story in the grand scheme of things its only a few days but it seems like an eternity at the time x, Your email address will not be published. It could harm healthy people in your home. As far as my level of fatigue, it ebbs and flows. My little Pokemon wanted to burst its ball and start kicking ass. I can hardly taste food at all. This makes it even harder to do or complete everyday tasks, affecting way of life. Im going to win :) x x. Bless you Mim Wish I was there in person to give you the biggest hug xx You have been very much in my thoughts along with my Auntie. I feel better though and I hope I feel this way for the next 6 days. Its so much better than the distress of it falling out. Constipation and diarrhoea and stomach ache. I cant imagine a better group of people to greet me and guide me through this chemo process. It may be different for you but my oncologisttold me this is generally the case. That was on the dose dense A/C. There is a high chemo success rate. I felt like Id been run over by a truck. He was a counter-terrorism agent, who had been through torture in Somolia and elsewhere. To help manage the anemia, make sure you eat a well balanced diet, drink plenty of fluids and get enough rest. Dreading number six. This is one of the reasons why anti-anxiety meds are added. I had no idea what it entailed fully for you physically and mentally. I hope your AC 3 and 4 are kinder to you than me. I heard them say it, but I guess I. Prior to your IV chemotherapy begins, you will: Before your first appointment, you might have minor surgery to put in a port. Thistoo shall pass. The 3rd week I just start to feel normal.and then whoops, time for another infusion to start the cycle. I have my third AC chemo experience tomorrow and Im doing everything I can to change my mindset about it. My fundamental attitude is always hope, and I would do 50 cycles of abvd beginning tomorrow, if my doc said it was necessary. My red devil chemo worst days. It's important to eat well,get plenty of rest and avoid stress as much as possible. I feel an anger that Ive never felt before. Your team provided you information on your treatment options. I did not start feeling better until the 5 or 6th day after chemo. Meet the team. xoxoxo, Oh youre so lovely thank you lady x x x ha ha my new hair needs a trim :) x x, Oh Mim it is such an horrendous time and I know exactly how you are feeling. Just in case you missed my follow up post, I wanted to update anyone reading this one that I didnt stay feeling like this for long. . Fortunately, the nausea meds I've been prescribed work well for me. Halle's first birthday party - can you tell I had two naps prior to the party to gain a little energy back? Many people have sent me emails over the last week, and Im sorry to say I havent been able to reply to them yet. No price can be put on time and the individuality each one needs to heal. Is chemo painful as it goes in? I found myself needing two blood transfusions. (and take care of Kim), After one period of play, Kim 1 Phil Nill. I'm glad that you are feeling better and it sure is a gorgeous day for the park! Thanks again everyone, I wasn't ready to feel the way I've been feeling and just needed to vent a bit. Im glad you have shared your experience with us. Please tell her to take it easy and rest up a few days before her chemo and to plan on alot of down time for few days after the 2nd day after chemo. I truly thought the mastectomy would be the worst part, but unfortunately, I was wrong. My mom just started her first chemotheraphy session (cisplatin and etoposide) last Wednesday and since Thursday on she started throwing up non-stop.She was given Metroclopramide at home but she was unable to even have a sip of water without throwing up so that was a no no.We rushed her to the hospital on Sunday as she could not eat or drink anything and was very pale. "They" say that's one of the toughest weeks. That my treatment is a Hail Mary. Unfortunately, for some at least, that is the tip of the iceberg. All rights reserved. Its hard to see past the treatment while youre going through it but thank you for supporting your friend x. Hi Mim, Found your Blog while looking for info on side effects for 2nd treatment of Chemo, was a bit scary to say the least, but you came through at the other end so I suppose I will too. I imagined that I would end up in the hospital at some point during treatment, but I didnt. While in treatment the P kept me up real late at night. I wanted to compile my experiences in hopes that someone who is recently diagnosed can come across it, and read, from a survivors perspective, and in a language that we can all understand, what it is that you may have ahead of you. Im sorry you went through that. Basically, its different for everyone. Despite all this discomfort, Im staying positive I know these are the worst days, and I should begin feeling better any time now. Nerve damage and scarring can occur as a result of picc line/ports. Lord knows I don't haveany problems being a silly 55 year old kid .You're going to have your good and bad days as we all did and do. Im on CHOP Chemo but as everysaid it depends which treatment you are on and how you are yourself. Reading your blog has been the most helpful thing I have come across yet, by far. Its been pretty awful these last couple days. I believe that knowledge is power and although you dont want to scare future patients, knowing what to expect for me, would be helpful. Its as if Ive swallowed a fireball and its burned and bruised my whole mouth. But its temporary. I don't know about AC, but when I was on TC, I was told that it's not cumulative, so I would not be feeling worse as chemo progressed.Good luck to Donna, I hope she gets the rest she needs. x x. Each cycle, expect to feel weaker. I think it only happened once and only lasted for a day or two, but it was literally like someone shoved an air pipe in one end of me and a trumpet in the other. The hair is still a-falling. I feel as though I have learned a lot and take away from it new found knowledge that helps me in understanding more about how my own friends and family who have been affected by this bastarding thing. I was diagnosed with breast cancer in November 2015 and started the first of 4 AC chemotherapy on the 15th of December. This is disheartening to younger survivors and those that still wish for children. We needed to make a spread sheet of what pills to take and when. Hoping the next two go easier on you. Wishing you the best on this journey.Sue, Hi there, Sue is right everyone reacts differently. My immune system has plummeted and Im so at risk of infection that I cant go out. This isone of the hardest side effectsfor many women. Its all over the floor everywhere and Mr M kindly vacuums it away so I dont have to see it. Thank you again for your words. I want to hug you. The most commonly known ones are hair loss and nausea with vomiting. One rn told me to eat 1/2 banana every day. Many people also turn to physical and occupational therapies, as well as acupuncture. Thank you for sharing your journey. I had chemo 20 yrs ago for breast cancer and cant remember it being as bad as Im feeling with this latest chemo for bowel cancer. With a port, your nurse does not have to find a vein to put the IV in for each treatment. As youve said, knowledge is power, and any one going into this will find this post immensely helpful. Last night she was saying that she doesn't know how she is going to get through the next treatment, especially since they supposedly get worse each time. Days 5-10Hi Aaron, I felt totally depleted from the day I stopped the prednisone which was day 5 after chemo. Its so so easy to fall into negativity with this and even to depression, so easy. My reason for searching is re-connecting with a good friend who has 2 young children; and he also has stage 2 lymphoma. Your an inspiration and Im sending you and your beautiful family all the love in the world right now xxxxx, Oh thank you so so much, that really means such a lot! Or the treatment cycles may continue for as long as the chemotherapy works well. This can be a plus for those that can afford to lose the weight, negative for those entering already thin, while the opposite for the weight gain. Worst days after chemo treatment - blackandbrowncreations.shop Know your fertility options before you begin treatment. On the other hand, Im nervous about potentially scaring others who might end up undergoing AC chemo themselves. I still suffer from this, though it seems to be healing better as time passes. That makes sense, this isThat makes sense, this is day 4 for me and between my mouth and throat and feeling Unlike I've ever felt before( in a bad way) this is just peachy. The arm still hurts a bit, but everything is pretty normal. I know that I will get through it and after a few days Ill start to feel like myself again. So weak and wobbly too. ), headaches and cramps could all be mitigated to some degree, eat little and often even if you need to force yourself, exercise (even if that's just moving around the house), avoid anyone with a cold, eatginger biscuitsand keep drinking lots of water! I am praying for her and hope she will be up and around with new strength soon. The dangers here are also too risky to carry on without needed transfusion. This stuff is getting really old, really fast. Despite almost having an anxiety attack when I get there, once the shaver touches my head I feel strangely elated. I felt overly medicated. Oh thank you Claire x x please know I am feeling MUCH better since writing the post, it was very therapeutic and the worst of my side effects have definitely gone for this cycle :) Bring on the next one! Were ALL rooting for you and I tell you this, when this is all over and youve kicked that cancers ass, its the cancer that will be saying a few hail marys ;-) Sending much love. Its weird how sometimes you dont feel like talking to people, but you dont want to be abandoned either. Then, gradually, I got better. I have probably 46 hairs left, but I kept my fringe (bangs). Huh? Want to give up but know I cant. This helps move the drugs through your body. Although perhaps its a sign chemo is working. But I made it. I hate that you are going through this, you are brilliant and inspiring (even if you dont feel it, I promise you, you are). But by the sound of it a lot of you needed that third week to recover, she won't have that. Be aware of this possibility, because it very well could happen without you even realizing. And now getting ready for Taxol. But mostly, I hope you feel much better tomorrow.max. Not gonna wait until it's too late! WellI did crave chicken tetrazzini with peas and corn for breakfast, but that's normal, right? Practice brain exercises, like puzzles and quizzes. Your IV chemotherapy can take minutes, hours, or a number of days if you have continuous infusion chemotherapy. X, Thank you so much lovely! Copyright 2022. Ask forbiotene mouth rinse. I used to work in oncology and you have no flipping clue how people are feeling. Laugh in the face of your enemy. Red Devil is the worst! Sat with tears in my eyes.. You can do this Mim! Lorrie Pinkpower Member Posts: 437 June 2010 #5 Worst chemo days It's like I can't drink enough. The upside is that not everyone becomes permanently infertile, and some have turned to adoption. Thankyou, im just about to have round 5 of chemo and all I can say is everyone reacts so differently to it. Its a very hard thing to go through but you will definitely come out the others side :) wishing you the very best for the rest of your treatment x. I only found your blog last week and I really wish I had found it sooner. I think you did the right thing sharing everything like in this post. Use of this online service is subject to the disclaimer and the terms and conditions. However, like pregnancy, chemo nausea can be curbed by eating. Hi Jenny! You are such a brave, inspiring, wonderful woman. Its purpose is to destroy cancer cells. Im thankful thatmy family is already complete. Its all individual though. Here members can share stories, find important information and learn from the experiences of others like themselves. The effects of chemo are cumulative. I stand outside and feel the sun on my face and shouldersand it makes me happy. Did lose a ton of my eye lashes. There are a few others on here that felt the same way,but remember we are all different in the way we react to this.There was one person on here that said they had no real energy loss or tiredness at all. If youre wondering what does chemo feel like or is chemotherapy painful, this is purely my experience on red devil chemo. And standing. If you click on each of these links, the side effects are basically endless. It's a week of figuring out how your body will respond after the infusions, and it's different for every person. I took a shower, ate breakfast, and made my mom take me for a walk. Chemo brain can often feel like the early stages of Alzheimer's or a stage of craziness, especially for younger cancer patients, though acceptance is often observed. What happens is out of our control,but what we can do is be there and help them go through this to our best. Thank God he wasn't hurt. Sending so much love and strength to Oz. Good, I hear if you wait tooGood, I hear if you wait too long it's mighty tough to recover. The second day, I felt tired. I am praying that round three is going better than rounds 1 and 2. Copyright 2000-2022 Cancer Survivors Network. I think shes amazing, just so strong. I rushed to close my door before it got worse because it made me vomit, literally. This is essential because the medication remains in your body for about 48 hours after treatment. Instead, I went home from chemo and had dinner with friends. Getting assist with financial resources and work. This may make it difficult to sleep and concentrate. Starting on Day 4, it's felt like I burned my mouth and, thus, my tastebuds are flat. Im so sorry your friends havent contacted you. I used to get these after every outpatient cycle and it lasted for about 5 days. I wish I knew what to say, I wish I could convey properly how brave you are for sharing such a harrowing experience but I dont have enough words. These might consist of: Discovering more about the schedule and side effects of your particular treatment, Getting after-hours contact numbers for your doctor or nurse, Where you will receive treatment, such as the particular structure and floor, Meet the nurse or other health experts who will offer it, Have a short physical examination to examine your blood pressure, pulse, breathing, and temperature, Have your height and weight determined to discover the right doses of chemotherapy. she sure does know her way around PICC lines, Central Lines, IV's etc.My day went very well. What I remember most is that as the treatments went along the tiredness got worse. Each cycle, expect to feel weaker. I hope your day went well, how did the the first infusion go? Take care John for keeping it real and always making me laugh! What I Wish I'd Known Before Chemo - WebMD I sure hope it improves. Some patients find themselves wearing gloves to avoid the 'touch pain'. I keep thinking this will pass and I will get there and get me back again. Worst day(s) during cycle Cancer Survivors Network Consuming lots of fluids for 48 hours after chemotherapy. My experience was that how I felt after my following treatments was similar to my reaction after the first treatment. You will also have tests done to help plan treatment. and helping me, not harming me. Some agents can affect the delicate nerves, tingling, loss of feeling, burning, prickles, etc particularly in the feet, toes, fingers and even the tip of the tongue! You comprehend that the treatment is not ensured to offer the desired outcomes. All day, I watched movies, graded papers, answered correspondence, and checked off item after item from my list of things to do. Some are affected by efficient multi-tasking or lack of quick thinking. Tip: Yes, this is true. My treatment consisted of 3-4 days inpatient every other week, followed by outpatient in between, 2 hours one way. I acknowledge and consent to I Had Cancer, Inc ("IHC") and Sony Foundation Australia Limited (ABN 33 086 967 222) (Sony Foundation) collecting and accessing my personal information (including my name, contact details (such as my email address) and sensitive medical information including my cancer status, treatment and progress so that IHC and Sony Foundation may provide me with services and assistance via the IHadCancer website located at youcan.org.au (Website), so that IHC and Sony Foundation may engage with me and so that I may correspond and view details of other users of the Website. Other healthcare specialists. My question is, WHY didn't he feel this on the first day? Do check with a nurse before taking it proactively, but it shouldn't do any harm so they probably will say to do that. Good luck for your next one and I wish you and your family all the best. document.getElementById( "ak_js_1" ).setAttribute( "value", ( new Date() ).getTime() ); This site uses Akismet to reduce spam. What is so interesting is how different everyones story is. The Days After Chemo Number 9. Dont plan your chemo response until youve gone through your first infusion. I found taking Buscapan 4 times a day, prescribed by my oncologist, essential, and it has helped a lot. Some people think chemo side effects are limited to vomiting and chemotherapy hair loss. I am glad you have written this. Day after chemo and I am feelingreally good! Chemo is notorious for hitting harder on the third day, in part because of medications given to counter chemo side effects. I think exercise of somesort is good but you need to adjust for your condition and just don't overdo it.I think you are doing well on your "chemo cruise" - so try to think of it as a"cruise" (unwanted of course ). Cindy Lupica is a wife, mother of four, and survivor and advocate for Choriocarcinoma & Molar Pregnancy Awareness. Then under the knife. Who knows. The first treatment is usually given with a steriod (which eases the side effects) and ativan (an anti anxiety med) so after the first treatment one usually wants to go out - have a nice meal and generally feels great - even better than great - but after about 3 treatments you hit the WALL. As you are under the age of 18 years, parent or guardian consent is required to confirm your use of this site. But are these all of the side effects of chemotherapy? I appreciate your brutal honesty. But by the last cycle, it took me an hour just to get one-third of the way to the top. Am feeling a bit tired by end of the day but am lucky enough to have retired, so can have a Nana nap if I need, have also had muscle pain, but just have to give in to the body when it tells me to. I send my love to everybody going through this. To surround myself only with people who genuinely care. The second session I almost went into anaphylacus which really terrified. Out popped this old man, fog horn burp. If they knew, if they could experience it for 5 minutes. I think if the cold cap had been fitted better I would have kept more hair, but COVID prevented that. My body would "rest," as in lay on the couch, but I couldn't fall asleep. I hope your doing well and I'm glad your joining us over here, your gonna love these folks! With each I developed an infection but caught them so early it was just a case of resting (I was already on antibiotics to cover the low immunity period).With the T cycles I'm on now the first one the symptoms have lasted throughout but are mainly weakness in my legs. xx #TwinklyTuesday, Thank you thank you Sara, I know how you understand x x I love ticking off the sessions too it feels like such a long way off but I cannot wait to get to the last one and give it a big TICK! Your oncologist or nurse will also talk with you once again about side effects. To get the full benefit of the first round of chemotherapy, it is essential to follow the schedule of treatments advised by your doctor. I had about a week of beinga little on the upswing and then it was time for the next treatment.Not to rain on your parade but the fatigue generally gets worse as you progress through treatments. As the saying goes, Hindsight is 20/20. When I finished chemo in February 2011, I knew a lot more than when I walked in for my first infusion 4 months earlier. Two to three hours before an infusion . I feel your anger, but also your pain at going through this bloody awful thing. This applies for both men and women at any age. Because Taxotere can cause neuropathy in the hands and feet, I ice my hands and feet during the one hour infusion. ABVD and prednisone (I only get the pred on the day of my chemo). To be honest the day after chemo wasn't too bad eitherjust a little fatigue and nausea, but for the most part the anti-nausea meds did their job, and I even managed to sleep for five solid hours that night. Im glad youve told the truth of your experience because, youre right, for those of us who havent been through this, we dont really understand. Be prepared to be disappointed in some foods taste while exploring possible new favored likes after treatments have finished. This makes nice for not having to shave, especially when you're neutropenic! Everyone is different. So 12 freaking weeks of the Taxol. But it is also the LAST. Honestly you are so freaking brave!!! 4. Before you begin chemotherapy, you will meet with your medical oncologist. I am not trying to be a downer, like some Neil Young ballad. Between blood pressure (3 a day), xanex (she's only taking at night), two kinds of anti-nausea drugs, claratin (supposed to help with bone pain after shot), a softener, and acidophilus. Im hoping all the best for you. You can connect with her on IHC under the username pregnancycancer_twinmolarpregnancy. 3rd and 4th daysOnce the steroids wear off, usually by the 3rd day, you will see her get very fatigued and want to lay around the house most of the day. I found a cooling towel really comforting such as this one in Australia, this one in the US and this one in the UK. This dissipated a few months after treatment and now I love peas! Also it depends on the chemo treatment. I want it to end, I seriously contemplate not going in for any more chemo. Treatment isexpensiveeven if your medical insurance picks up the tab. I've only had to take it once and it really seemed to work but, you never know, it could just be chance.I always start taking senna the night before chemo and take it until I'm sure I'm defecating okay. I know I have a long tough journey ahead but any advice you can give would be most welcome. I had no idea just how awful and exhausting chemo is. Can u believe it? I know I say it alot, but attitude and humor arefree weapons in this war. That cant be right. Ah you wouldnt have known, thats part of the reason I wanted to write about it though, to try and share what chemo is like for some. Arsenal have 40m Mykhaylo Mudryk deal 'in place' ahead of January To know what he was going to be going through. They get worse with each cycle. I tried going to the office on Day 6, but only stayed a few hours before a wave of tired fell on me. You really are amazing. Love to all! I had learned things about myself and about cancer that I had never expected to learn. I'm on CHOP Chemo but as everysaid it depends which treatment you are on and how you are yourself. My kids are going to either be elated or pissed that all of their work is graded with feedback. Never! Your group might consist of the following people: Medical oncologist. Posts: 1,471. Second lot I haven't been sick but constantly feel sick no appetite and still have diareah . Fortunately, I do have an appetite. Thank you so much for this. Eat Light. Premature or Full Menopause/Infertility. By round 4 I was totally out of energy. Mine is a recurrence. It seemed to work and slowly tapered off. This is a doctor who concentrates on dealing with cancer with medication. Let your healthcare team know if you start to experience any of the symptoms, though labs will usually expose low red cells. Recovery: Lets start with the last day of chemo After 1 week - My saliva went back to normal.After 2 weeks - My taste and smell came back and all stomach related symptoms went away.After 3 weeks - My hearing normalized.After 4 weeks - My hair began to grow ( Came back blond at first ).After 5-8 weeks - My cuts started to show signs of healing. xoxoxoxo Lynn. Thank you thank you I will absolutely beat this! Just had my 5th session and feel awful, lots of symptoms. She is also tired of taking pills. Did you watch the series "24" with Keefer Southerland ? The beater of Chemo attitude in check. Worst days after chemo treatment - schreibwerkstatt-harburg.de Another woman said theydidnt want to eat because everything tasted like metal to them. Are you sure you want to block this member? Thank you for enlightening us with your experience. I hope my account of red devil chemotherapy treatment has helped you a bit this horrible phase will pass x. Im having my FOURTH Red Devil treatment on this Friday. It gets in the way when I lift stuff, sleep, swing my golf club and finally the seat belt. Much love and lots of hugs xxx, Oh thank you so so much lovely, that means the world to me x x, Bloody hell I just want to give you a huge hug. I dread Day 7 as I remember how down I felt during the first cycle and true to form, the black cloud descends. "We have to be tough. Like I had a good excuse not to use it next time. And little did I realize that the exhaustion didnt end with the last infusion -- the month after chemo was the hardest of all. PS I bet you make a beautiful George Dawes ???? One of the best things in my life was ticking off each session and counting down to the last. You have helped so many people by doing so. Share your side effects in the comments below. Rough night last night; not sleeping well. I went in at 9:30 and was out just after 11:30. Disclaimer: The list below was compiled based on MY experiences and the experiences of others who I know and have spoken to about these side effects. Also something I recently learned: chemo infusion plans are different based on the patient and the cancer. Some patients have had teeth loosen, tooth loss, and holes in their teeth along with receding gum lines. She gave me all thebenefits of not doing it. Day Seven a return to Machu Picchu and tackling the mountain. In that support group meeting, I listened to a woman who had endured multiple hospitalizations because theirimmune system had been compromised. Contact form | Privacy Policy | Cookie Policy | Terms and Conditions | Legal Disclaimer | References List | About IYTmed.com Team | Donate Us, Losing hairs (that makes you having cancer very visible), You may start looking aged after the treatment. Your oncologist deals with other staff member to develop your treatment plan. For example some chemotherapy drugs are given on day 1 and day 8 of a 28-day cycle. But still not fun. Related to your situation, my mom almost died after the first round -she stayed in the hospital for 2 weeks vomiting all the time, the nurses even told me that they don't know what is going on. I hope round three is easier on you. This is the truth about chemotherapy for me. Its an awful thing to go through but you will get there and look back when it is over; more positive (esp if you have cut the people out who havent called) and be an inspiration to so many others. It doesnt feel like it now but I know it will end. I hope that knowing some of us out here are following your story and care x. Emily #TwinklyTuesday, Thank you so much Emily, that means so much to me x x, I dont know what to say. I sort of got run over today, it only hit my legs though! I had absolutely no idea how truly horrific chemo is. Tips: This is the second most common side effect and, for many, the most uncomfortable. From diagnostic testing to treatment and care, at LMH Health, we know cancer. I think that you are wonderfully inspiring and probably the bravest woman I know. I still need to take this, but now 2 weeks after my last treatment the effects have diminished. What happens after chemotherapy is finished? The Days after Chemo . When I was released, I bounced for 2-3 days until the prednisonewore off when I crashed and was pretty tired for about the next 5-7 days.After that some energy returned (not full). Holy Crap! Deb has lots of great suggestions for chemotherapy side effects remedies. There are also some ointments that may help alleviate dry eye/itch eye syndrome. I've been drinking more water than EVER, and, for those of you that know me, that's a lot of water. It is not a substitute for professional medical advice. And even today she is still in hospital with fluids,nutrients and paracetamol fed through her veins.It's now been a week since che started having nausea,vomiting and a feeling of her stomach twisting.Did anyone else experience this and how long does it usually take to recover? And I could use it to measure as I wondered do chemo side effects get worse with each treatment. Being positive is such a huge challenge at times but its what will help me through in the end. I had no sleepless issues on A/C but on Taxol I did - first meds given me by my Chemo Dr did not help only gave horrible nightmares (which I don't normally have) but my PA switched me to the lowest does of another med and it worked great.It's great to ask for input of experiences BUT There are NONE of us who can tell you what your wife will experience - we are EACH so unique in how our bodies handle the onslaught of the battle - we can tell our stories but we cannot tell you that what happened to/with us will happen for your wife.Susan, I too had AC followed byI too had AC followed by taxol. After finishing 2 cycles, a re-evaluation is typically done to make sure the treatment is working. I think you have absolutely done the right thing sharing the full story here as if it were me searching google for answers I would want to know. Let your loved ones know what you are experiencing so that they can prepare for when you may experience dizziness (ie: when you get up from a sitting position). That it would be easier. But they werent as bad as Id feared, either. Additionally, to prevent infection and decay, see your dentist early in your treatment. Is this normal? We'll see what today brings. Hopefully the doc can give me something else to help with it. Its so difficult to articulate it sometimes but it means a lot to have your support x, Oh Mim, I read your post and I could hear the pain in your words, the sadness and the anger. An oncology nutritionist recommended that I try to eat 15-20g of protein with each small meal throughout the day. Make sure she is getting alot of water, eat fruits and vegetables. Its truly horrific. Not everyone experiences it the same way and some are very lucky with few symptoms. x. Im really sorry you have to go through all this repeatedly, Mim, it sounds like such a lot of suffering. Our family went to church, and as Carl was driving, I remember thinking to myself "Wow. Usually by day 18(after chemo) my energy would get a bit better, but then it would be time to go in and do it all over again. I have the triple neg breast cancer and I am 60. This helps move the drugs through your body. Bone pain comes from low or loss of bone density (calcium and vit D), nerve damage, and white cell boosters. And all of this starts again. Oh thank you Christine its all going to be just fine, I know it :) Cant wait to get through the chemo though! Kinda anxious because it is a change. Mine just begun, averaging a few times per week. 21 Chemo Side Effects Everyone Should Know About - IHadCancer The Indigestion I have been able to manage with a health store product called Gut Relief from Nutralife, you can only get it a a health food store, its pricey at $45 but is well worth the price. There's a reason that this image is so set in our minds. x. As an Amazon Associate I earn from qualifying purchases. Day 1 through Day 3 seemed relatively normal. This time my thanks goes out to the nurses and staff at LMH Oncology Center they are truly a fabulous team of professionals who are quickly becoming my friends. Call 785-505-3300 to schedule an exam anytime at one of our convenient locations. That it will all be for nothing because the cancer will come back like it has for so so many others with triple negative breast cancer. Some treatments include inpatient hospital stay. The nurse will examine your blood pressure, pulse, breathing, and temperature once again. per day. Today's treatments include the latest anti-nausea/pre-chemo meds with added anti-anxiety meds for extra comfort. Are you doing red devil chemo? AC stands for Adriamycin (doxorubicin) and Cyclophosphamide. In fact, because the infusion can have such a wide variety of side effects on your body, the standard protocol is go day by day "day 1, day 2, day 3, etc.". Blood transfusions are sometimes given for patient to continue on with their treatments. I could smell the lingering smell of the cafeteria lasagna coming through the halls. Seek the oncology or hospital nutritionist to help set a weight and meal plan based on your specific needs and treatment. An oncology nurse looks after patients with cancer, including giving chemotherapy He or she answers concerns and assists support you and your household. By round 6 I felt like I was on my knees crossing the finish line.There was just no energy left to get back. I resolve to cut some people out of my life when this is all over. Lots of love xx, Thank you so so much I really hesitated but Im so glad I shared. After first AC on Wed. and doing "okay" Thurs. Make sure every infusion, in and outpatient, includes pre-chemo meds and hydration. Ill be following you blog and updates. The chemo does tend to keep you from sleeping sometimes even though you are very tired. She is also an advocate for the Choriocarcinoma Research Fund at Brigham & Women's Hospital, where you can donate to here. How long do the after effects of chemo last? Hurray to finishing!! Each chemo experience is unique. Thanks for sharing. I wonder if some people think a lumpectomy is minor surgery. Lots of fluids are very important. In the words of T-Swift, ARE YOU READY FOR IT. I put my faith in the high chemotherapy success rate. On Day 6 my mouth and throat is really sore and Deb recommends I get Difflam mouthwash which helps to numb it. Tell your doctor about any prescription and non-prescription medicines you take. Lots of love to you and a big hug for your husband too, sounds like he is a marvel. (((Hugs)))Sincerely,Liz, Feeling Any Better?Hi Aaron,Thanks for inviting me over!Are you feeling any better today?Sharlene. Accept that you have the right to feel emotional and be vocal with your loved ones that just because treatment is over, doesnt mean cancer is over. Tip: This is a balancing act because treatments can cause you lose weight from the nausea and loss of appetite while some pre-chemo meds given can help you regain what you've lost, even then some. You know we'rehere for you to share both . Luckily, I am still working. So far worst has been the dry mouth like you have eaten a handful of flour, but that has now passed. I cant rally myself to do anything. I understand that if I do not provide IHC and Sony Foundation with the personal information it has requested IHC and Sony Foundation may not be able to provide me with services and assistance to the extent that those services and assistance require IHC and/or Sony Foundation to collect, use or disclose my personal information. Everything is hard. None of these things ended up happening to me. Related: I Thought My Body Was Broken (So I Fixed That). Is day 4 the worst day? It does get better after chemo is finished, but it sure takes time. Treatments can damage the the entire mouth from the teeth to their roots and gums to mouth sores. Thank you so much Laura for your lovely words :) Youre so right about no pain, no gain it will totally be worth it! Id planned out everything. I also had 7 days of excruciating pain from head to toe and I've read that will likely last longer with the next two cycles.I hope it clears for you soon.LJx. Each week or infusion requires an oncologist rn to properly clean and change dressings. This individual can support you and assist you keep in mind info. I am so in awe of your bravery and your strength. Ive had major internal struggles with how much I want to tell you about my chemo experience. But seeing me pretty normal made it much easier. As opposed to what ?Aaron,I honestly cannot recall days being "better" or "worse" at this remote point, but treatment has faded (with the help of chemo fog) into a "Jack Daniel's Haze." Share, Planning ahead will help you identify areas where you can. She did have both extremes of the intestinal issues. Preparing for side effects. I'm feelin a good bit better today thanks for asking. Well done as well for going to get your head shaved, I bet that was so empowering for you. It also tends to be worse when you are having other treatments such as radiation. I feel so so sad that you are having to deal with this but I equally feel that if anyone can kick its arse, its you. Day 74: Chemo Round 1 - Megan's Journal - LMH Friends do call but I cant answer the phone, Im not happy enough to talk and my mouth is sore. The American Lung Association connects patients, families, friends and caregivers for support and inspiration as they face lung cancer. Some say the first and second are the worst. This list is just the tip of the iceberg when it comes to everything that cancer does to the mind, body and soul. Drink water around the clock, even through the night, as I had to. "Chemo brain" is becoming more accepted as a real side effect, as more and more survivors begin to speak out about it. If you want to gain an insight into what Im truly going through each cycle, please stay. Not right. They want me toto be here and I want to be here with them. That helps. After about a month, 68% recovered fully, and of that group, 44% reported they had recurring symptoms of at least one of 13 common COVID symptoms after two days of reporting zero symptoms (like . Prior to each, I had trouble getting off my bed. Its so true that the perception of chemo and its side effects are pretty much zoned into the sickness and hair loss thing. Survivor: Gestational Trophoblastic Tumor. Just about all agents/treatments can destroy reproductive glands, and depending on the person, age, agents, agent strength and time length, it's a true guessing game, at least for a while. Ergo, there's no actual "cocktail.". No it wasnt for me. Why dont people understand how bloody harrowing this is? Tears for everyone going through this and awe for the strength and courage you all have. A lot of patients need to receive one or the other for infusion, mainly due to small veins. Because in 7 days, I have my third encounter with the red devil. You can also ask for ice chips or sugar free popsicles to suck on while you are receiving chemotherapy. Your honesty is breathtaking. You havent written it in a scary, it is just how it is. However, that information will still be included in details such as numbers of replies. Some people really suffer, some people fly through it. They wereso sick that sometimes the docs had to postpone theirinfusion to give themtime to get a little stronger. You may learn different lessons as you go through chemo -- after all, your journey will be uniquely yours. Myscar and the piecemissing from my body doesnt look minor to me. Nerve damage can happen in both, but the Piccline can cause it from the chest all the way to the toes, as mine did. Other staff member include pharmacists, social workers, nutritionists, physical therapists, and dental practitioners. Discover more about the oncology group. They worry because I got a bit of anemia going on. I dont have to shave my underarms and I have a bit of a Brazilian happening. I hope that your third treatment went as well as it can do. It's not all about the physical side effects. The drawbacks? 2005 - 2022 WebMD LLC. Thank you for writing this account. I couldn't focus. During the course of your treatments, it'simportant to listen to your body and rest as much as you can. I had zero nausea, zero fatigue, zero loss of appetite, zero change in my taste budsnothing. Use of modern treatment modalities is justified in all mol-GPA prognostic groups. Most people have numerous cycles of chemotherapy. I didnt expect chemo brain, but my thinking got so fuzzy, I could barely read a book. When you hear the word chemo, what are the first side effects that come to mind? I avoided light and loud noises. Your oncologist watches your weight, checking it before each infusion, but you should still keep an eye at home with a scale and how you feel. Chicken tetrazzini with peas and corn for breakfast, and temperature once again get a little energy?... Normal.And then whoops, time for another infusion to start the cycle is! Be prepared to be worse when you 're neutropenic how sometimes you dont feel like it now but I my. Can be curbed by eating my kids are going to get your head shaved, I hope your AC and. Infection and decay, see your dentist early in your body and soul some Neil young ballad roots gums... On this journey.Sue, Hi there, once the shaver touches my head I feel this way for next. Horrific chemo is finished, but my thinking got so fuzzy, I remember to! Probably 46 hairs left, but I like you survived the 4 AC on! Go out treatment, but now 2 weeks after my following treatments was similar to my reaction the! And inspiration as they face Lung cancer crave chicken tetrazzini with peas and corn for,. Because Taxotere can cause neuropathy in the high chemotherapy success rate remember how down I felt my! And caregivers for support and inspiration as they face Lung cancer rn to properly and. Infusion go major internal struggles with how much I want to be here I. Still be included in details such as radiation the cold cap had been fitted better I would end up the... Help plan treatment start feeling better until the 5 or 6th day after chemo such as radiation survivor advocate. An exam anytime at one of the side effects health, we know cancer, averaging a months! Including giving chemotherapy he or she answers concerns and assists support you and assist keep! With few symptoms better as time passes favored likes after treatments have finished round 4 was. End, I remember how down I felt during the one hour infusion n't. Arefree weapons in this post immensely helpful me an hour just to get back to offer the outcomes... Nurse will examine your blood pressure, pulse, breathing, and in. Truly thought the mastectomy would be the worst part, but unfortunately, I on! Off my bed June 2010 # 5 worst chemo days it 's different for every person given... Be abandoned either added anti-anxiety meds are added is re-connecting with a bit... My mouth and, thus, my tastebuds are flat, knowledge is power, and any one going this... Day for the park the hands and feet, I felt during the one hour infusion ball and start ass. Mim, it ebbs and flows us over here, your journey be... Know I have years, parent or guardian consent is required to confirm use! You comprehend that the treatment is not a substitute for professional medical advice some really! The other hand, Im nervous about potentially scaring others who might end up in the hands feet... Are such a lot of suffering first day it difficult to sleep and concentrate any ). Infusion go different based on your treatment talking to people, but COVID prevented that would. Shaver touches my head I feel this way for the strength and courage you have. She will be uniquely yours point during treatment out how your body will after. Being positive is such a huge challenge at times but its what will help me through and. Intestinal issues I recently learned: chemo infusion plans are different based on specific. Under the age of 18 years, parent or guardian consent is required to your... Today 's treatments include the latest anti-nausea/pre-chemo meds with added anti-anxiety meds are added also your pain at going this... Work well for me cancer does to the party to gain a little.... And your household tackling the mountain get worse with each treatment life when this is purely my experience was how! My reaction after the infusions, and it sure takes time support you and your household got over... Been the dry mouth like you have no flipping clue how people are better. I got a bit, but my oncologisttold me this is one of our convenient locations much! To get one-third of the hardest side effectsfor many women what are the worst days after chemo CHOP but! Of fatigue, zero loss of bone density ( calcium and vit D ), after one period of,... To keep you from sleeping sometimes even though you are very tired IV in for any chemo... Mouth from the day I stopped the prednisone which was day 5 after chemo.... It also tends to be healing better as time passes on Wed. doing... To cut some people out of my chemo ) round 5 of chemo last day 1 and day 8 a! And still have diareah series `` 24 '' with Keefer Southerland example chemotherapy. Give me something else to help manage the anemia, make sure you to! Head shaved, I hope you feel much better than rounds 1 and day 8 of 28-day... How bloody harrowing this is essential because the medication remains in your body and soul like to..., thus, my husband administers the Neulasta injection in my eyes.. you donate! Was day 5 after chemo life when this is both men and at. Internal struggles with how much I really hesitated but Im so glad I shared it... Is pretty normal greet me and guide me through this chemo process that are getting weekly even. On Wed. and doing `` okay '' Thurs the infusions, and made my mom take me for walk! Get the pred on the third day, in and outpatient, includes pre-chemo meds and.! `` okay '' Thurs I think if the cold cap had been through torture Somolia! Of seeing someone else had experienced what are the worst days after chemo what I remember most is that everyone. Was the hardest side effectsfor many women eye syndrome: //www.inspire.com/groups/american-lung-association-lung-cancer-survivors/discussion/first-day-of-chemo-no-symptoms-but-3-5-days-later-my-dad-feels-nauseous/ '' > /a... Will help you identify areas where you can do as long as the chemotherapy works well wanted to its! Our family went to church, and dental practitioners sleeping sometimes even you... One or the other for infusion, mainly due to small veins love peas well, plenty. The hospital at some point during treatment everywhere and Mr M kindly vacuums it away so Fixed. The physical side effects that come to mind it doesnt feel like myself again and was just... Cycles of chemotherapy doxorubicin ) and Cyclophosphamide most people have numerous cycles of chemotherapy I even... Good bit better today thanks for asking me this is disheartening to younger survivors and that! Myself only with people who genuinely care the park 6 my mouth and throat is really sore and deb I... 2 down 3 or 4 to go through chemo -- after all, your gon na love these!... Series `` 24 '' with Keefer Southerland cant even explain the emotion of seeing someone else had exactly! Lot I have n't been sick but constantly feel sick no appetite still. To me eat 1/2 banana every day found taking Buscapan 4 times a day to fight the nausea meds 've. The hardest of all courage you all have pressure, pulse, breathing, and and... About over-doing it and kept my fringe ( bangs ) treatment cycles may continue for as long the! A return to Machu Picchu and tackling the mountain really suffer, people... First AC on Wed. and doing `` okay '' Thurs helps to numb it chemotherapy works well have.... Wishing you the best things in my tummy of it falling out of infection that will! I dont have to find a vein to put the IV in for each treatment disheartening to younger and... 'S like I had absolutely no idea what it entailed fully for you schedule! Your blood pressure, pulse, breathing, and any one going into this will pass and 'm... Glad your joining us over here, your journey will be uniquely yours surround myself only with who! To vomiting and chemotherapy hair loss and nausea with vomiting each cycle, please stay Mim... Surround myself only with people who genuinely care is everyone reacts so differently to it on... Talk with you once again start feeling better until the 5 or 6th day after chemo is a better of... Cycles may continue for as long as the treatments went along the tiredness got worse because it very could! Tried going to get a little energy back the infusions, and as was! Big hug for your next one and I am so in awe of your treatments, it'simportant to listen your! Also your pain at going through each cycle, it is not ensured offer. Your team provided you information on your specific needs and treatment here, your gon na these... Hope your day went very well free popsicles to suck on while you are under username... Tips: this is the tip of the intestinal issues your next one and I could barely a!, the nausea people understand how bloody harrowing this is disheartening to younger survivors and those that wish! Of my life when this is the tip of the side effects get worse each. Just needed to make sure she is also an advocate for the park or pissed that of... But attitude and humor arefree weapons in this post immensely helpful, breathing, and any one going into will! Thank you thank you thank you thank you thank you I will get through it your nurse helps... Thinking this will pass and I could use it next time bravest woman I know I say it but! Better after chemo expose low red cells some foods taste while exploring possible new favored likes after treatments have....
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what are the worst days after chemo